Moving Forward

Author: Donna  |  Category: Family

Lainey already has a hobby…daddy downhill skiing! (great view of her cleft, eh?)

As of today, Lainey has had all of her in-office doctor visits required before her palate surgery can be scheduled. Here’s the low-down on those visits…

ENT: Lainey has fluid in both ears, and will most likely need tubes placed during the palate surgery. I say most likely because they weren’t able to repeat the tympanogram (first one done during the clinic appt on 3/20) during the ENT visit, so they will do that prior to surgery and if it shows she still needs them, they will place the tubes.

Plastic Surgeon: The surgeon wants to close Lainey’s entire palate in one surgery, if possible. He’ll do that by making incisions on both sides of the cleft, and pulling the muscle flaps over the cleft, closing it. At least, that’s the way I’m understanding it! There will still be a gap between the front of the palate and her clefted gumline. That’s where the dentist comes in…

Dentist: She was a superstar patient for the dentist, allowing them to clean and polish her teeth and get great views of her gumline and teeth. She has 2 teeth on the left side (cleft side) and 4 (all that should be there) on the right. Her 2 year molars aren’t in yet. He’ll do x-rays in 6 months to see what permanent teeth she has, and the timing of her gumline surgery will depend on what he finds. They will, sometime between the age of about 4-10, take bone from her hip and re-build her gumline where the cleft is. So, the dentist doesn’t need to be involved in her palate surgery.

Now, we wait to hear from the surgery coordinator. Our clinic coordinator is sending us a packet of info on what to expect both before, during, and after surgery. Two things I’m anxious about are feeding her for those 3 weeks after surgery AND keeping her hands out of her mouth. She’ll be on various levels of a liquid diet, fed either with a syringe and tube contraption of regular cup (NO sippy cups!). She’ll wear devices on her arms that are referred to as “no-nos” to keep her arms in a straight position. The ones we’ll use can be seen here, www.snugglewraps.com.

Here are a couple more pics :)

Another view of her trick…work those abs, girl!!

We were visited by some mallard ducks the other day.

Look at this adorable bow holder and bows! My ladybug group held a hairbow swap, and Kim sent this…couldn’t believe how many bows there were and she made the holder!

6 Responses to “Moving Forward”

  1. Wendy Says:

    She sounds like quite the little trooper! I am sure all the surgery sounds overwhelming to you all. :) I think Terri’s little Isabelle did ok with it and is doing well. I will be praying for the surgery to go smoothly and for little Lainey to handle all the necessary restraints etc. gracefully, or at least as well as a nearly 2 year old can!!! Let me know when it gets scheduled!!

    Wendy

  2. GramStegall Says:

    My heart is both breaking and overwhelmed with thankfulness. It is strange that it can do both at one time.

    Breaking because I wish Lainey didn’t have to go through all of these surgeries and doctors and restraints on her arms.

    Thankful because God gave Lainey to you all knowing that you would take care of all of this with the great love you have for Lainey.

    I hope she can have her 2nd birthday before the surgeries. I can just imagine her “diving” into her own birthday cake.

    Love to you all and hope everyone is feeling better.

  3. radicchi Says:

    Oh the joy in those “skiing” pictures! The kids watching the duck picture was precious too.

    We’ll stand with you in prayer through all of Lainey’s surgeries.

    Thanks for the announcement. I was thrilled to be included.

  4. EliseLiptack Says:

    Love those pics with daddy. I hope you are all feeling better now and I will praying that Lainey will heal quickly from her surgery. You are all so blessed!

  5. fourgrands Says:

    WHO is having more fun with the “Daddy Downhill Skiing”..Lainey or Daddy??!! Looks like they’re both having a great time! Thanks for updating us on her surgery. Bless her heart, we hate that she has to go thru all of this, but just look how lucky she is to have such a loving family to help her thru it..4 siblings who adore her and parents who love her dearly, not to mention 3 sets of grandparents who are crazy about her and aunts, uncles and cousins, etc. Yep, she’s blessed many times over and will have lots and lots of prayers said for her before, during and after her surgery. I think we’re “ok” here…not to worry!! Love the pictures!! Gonna go to bed so we can get up early and head for Tennessee! Love, Mom

  6. July06DTCsecretpal Says:

    Naomi had her palate closed this past Feb. and has done amazingly well! I got very creative with food that was “OK” for Naomi to eat! I can email you some ideas if you like! :)
    Lainey is gorgeous! I love to check in for updates! I LOL when I saw her new “trick!” She is a doll and is precious, as are all your children!
    Love, Sarah Houston
    mommy to Naomi b. 7/24/06 a. 11/11/07
    fellow “firefly”

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